A post will follow later tonight.
[UPDATE: Tues 26 Feb - Too late 00:15. I have much to do before we can go on holiday. Posting needs to wait until we're back. With luck I'll have chance to write the post while away. Perhaps time and distance will change my thinking but doubt that anyone else's will change. Are we the family from hell or are we lepers? I know what I feel but what is an objective assessment? Who knows? ]
I've taken this unusual step because I must blog on this subject tonight: tomorrow I'm taking the kids away for a few days .
I know the odds are that I won't find the time tonight and so I hope this precursor will stimulate me.
Are we so bad that the NHS doesn't want to touch us?
Are we winding everyone up so much?
Can we not see what all the clinicians see?
Are the NHS in the right and we are the cause of our own problems or are we a family with problems whom the NHS has unjustifiably labelled as difficult and, therefore, to be denied treatment.
Much more tonight if I can find the time. Once started there'll be a splurge of words.